Monthly Archives: August 2015

You Make Me Feel….like an idiot….

Caregivers, Humor, Multiple Sclerosis, Uncategorized, , , , , , , , ,

Last week I had to spend 8 hours in the hospital waiting for my brother-in-law to come out of emergency surgery. All went well, in fact, so well, that they sent him straight home. Because he had been without food or drink for 24 hours, I decided to  go get him dinner and bring it to the rehab center. I didn’t trust that at 7:00 P.M. they would provide a nutritious meal, or any meal for that matter, because, you know, “the kitchen is closed.”

When I arrived at the rehab center with his hoagie, chips and root beer (okay, not so nutritious, but he was hungry and I was tired), there was a tray being delivered to his room. It contained one pathetic grilled cheese sandwich. That’s it, not even chips or a pickle, after no food for 24 hours. There wasn’t even a picture of Donald Trump or Jesus burned into the grilled cheese, and yet we were to believe that it was a miracle he had a sandwich from the kitchen at this hour!

The next day, I was exhausted. i just wanted to stay at home and work on my computer, sit on my deck, read a book and be left alone. As I was enjoying my solitude, I decided to play some music while I cleaned up the house.

I could not get the BOSE to turn on. The only way the BOSE radio and CD player works is with a remote control. The old BOSE, which died and they so thoughtfully replaced for a mere $250, had buttons on the unit and a remote. But someone in design thought, “Hey what do we need those buttons for? We have a remote!”

I’ll tell you what they need those buttons for.

So this remote which is the size and thickness of a credit card, does not work. No matter how many times or how hard I press those buttons nothing is happening. In my infinite wisdom, I decide : “Oh I’ll just put in a CD. I don’t need to listen to the radio.”

So in goes, Carole King’s amazing album from 1971: Tapestry.

I cant’ turn the volume up to drown out my warbling, because, you know, the buttons don’t work. So I sing softly, so I can hear Carole.

http://www.youtube.com/watch?v=Msmnb676RxI

Three hours later I want to kill Carole. The earth has moved and everyone is so far away, but I can’t turn off the damn BOSE, because, you know the buttons don’t work.

I finally discover with a magnifying glass, in that credit-card-sized remote is a teeny, tiny place for a battery, which I do manage to purchase after going to three different stores.

It never occurred to me I could pull the plug, it was too late baby, for that.

“You Just have to Laugh…..”

©2015 Cathy Sikorski

 

Stay tuned for an important message…..

Brain Injury, Caregivers, Humor, Uncategorized, , , , , ,

My friend. Lisa sent me a Facebook message this morning before 8:00 A.M. I happened to be up and reading the newspaper (yes, I still have an actual newspaper delivered). It was a bit odd, both for the time and the message as it was one of those ridiculous cat videos. Neither Lisa nor I have a cat, nor do we share any cat videos, as a rule.

But okay.

I responded with something like: “Hahah. Oh that’s cute.”

To which she responded: “Fuck. that was a mistake and I sent it to someone so wrong. HELP!”

I said, helpfully: “Haha. You and technology. You do have a brain injury, you know.”

She messaged back: ” I meant to send something else, this video is STUPID. Help me delete it.”

I gave her instructions on Messenger how to delete the message that went like this:

“In the messenger box at the top is a circle that looks like a sunburst and it says “options”

and then if you click on it it says delete conversation.”

 

To which Lisa replied:

“What’s the Messenger Box?”

 

Now, I’m thinking: “Oh, boy, we are in trouble” Since we are typing in the Messenger Box.

So I reply:

“When your are on your iPad in Facebook and you send a message to someone it comes up in a box. The message box to send a message is next to the word HOME after the silhouettes of the people…its like a bubble of conversation.”

To which Lisa replies by calling me on my cell phone so we can have an actual conversation…much like an actual newspaper.

“Help me get rid of this stupid video!”

“Okay,” I say, “get off your android phone and go to your iPad, it will be easier there, because I have an iPhone and the screen isn’t the same.”

After a minute or two as two middle-aged incompetent Facebook users try to communicate about things that look like bubbles and sunbursts and silhouettes of people and gear-thingies and where to click on them and see what it says, I finally get off my computer and revert to my iPad so we can be looking at the same screen.

We somehow manage to both get into the Messenger app and find a screen that had options on my computer but doesn’t come up with options when you click it on the iPad. Ugh. How can this be? Why oh why do they keep changing the options?!?!  And then I see and owl icon and it says “help”. So I type in:

How do I delete a message?

Up comes an FAQ:

 How do I delete a message?

Put your cursor on the message and hold it down and the message will be deleted.

All of that took 45 minutes and a lot of swearing. I never did get to finish “Dear Abby” in my

actual newspaper.

“You Just Have to Laugh…..”

©Cathy Sikorski 2015

Here’s the “stupid” video for your viewing pleasure:

“Where’s the Beef?”

Caregivers, Humor, Multiple Sclerosis, Uncategorized, , , , , ,

One of the weekly treats I like to bring my brother-in-law, who is almost done in the rehab center, is a cheese steak. For some reason, this small gesture makes him enormously happy. He eats every single morsel and makes me pick up the remains with a fork so he doesn’t miss a bit. He’s become mildly obsessed with his food choices. This makes a lot of sense as it’s about the only choices he actually has on a daily basis.

If I wore a hospital gown every day, no shoes, didn’t go anywhere and could only choose my TV programs, I, too would be fanatically choosing my meals every day. So I try to be  understanding when it takes hours to go through the menu to pick his meals. I’m so understanding that I turned that job over to my mother. She meticulously goes through every single appetizer, main course, including condiments, right down to the amount of salt, pepper and sugar to bring with each meal, dessert and beverages. Then she makes a copy to leave with my brother-in-law so he can check to see what he’s having or if they brought what he actually ordered.

I find this OCD behavior over food and menus daunting. Probably because I’m on a diet. Or maybe because ever since my babies grew up, I’ve become Attila the Hun about having to worry about any body else’s food. And yet, as my mother and I were visiting him the other day the aide brought him a grilled cheese sandwich for his lunch.

The looks of horror on all our faces told her she was not leaving that room unscathed, because we had just finished this conversation:

Brother-in-Law: “What am I having for lunch, today?”

Mom:”I don’t know, let me look at your copy of the menu. So you chose a hot dog and a cheeseburger for today.”

Me: “Oh you’re having your own summer picnic!”

With that the grilled cheese sandwich arrives. This poor girl is accosted by all three of us with a resounding chorus of “Noooooooooooo!” like she had finally brought the hemlock as we had all suspected.

ice cream sundae“Don’t worry,” the aide said, “I will call the kitchen and get what you ordered.”

Now I’m trying to figure out how ‘hot dog’ and ‘cheeseburger’ looks like ‘grilled cheese’ on a pre-printed menu. But I still want to give everyone the benefit of the doubt. As I go to look at the menu, my brother-in-law starts to eat his grilled cheese.

“I might as well eat some of this, who knows how long it will take,” he mumbles through bites.

He eats half the sandwich, half the ice cream sundae, which he did order and it is now melting, and lo and behold the hot dog and hamburger arrive sans condiments. We take care of THAT catastrophe and all is well in the land of lunch.

By the way, I finally got my hands on that menu….there was no grilled cheese sandwich as a choice anywhere on any day for this entire week. I imagine the people in the kitchen saying things like:

“Oh we ran out of hot dogs, these people won’t notice a grilled cheese instead. I hope they’re not lactose intolerant.” Or any other kind of intolerant.

“You Just have to Laugh….”

©Cathy Sikorski

Mothers and Daughters…..Part 131

Caregivers, Humor, Multiple Sclerosis, Uncategorized, , , , , , ,

My daughters have come from far away cities to visit for a few days. It has made me reflect on Mothers and Daughters. I could do entire blog just about Mothers and Daughters….daily.

Last week as we were leaving the rehab center where my brother-in-law would be departing for surgery never to return, Mom and I began to take the few personal belongings from his room.

As we were leaving, my Mom picked up the three little mylar ballons each on its own stick, that people had given my BIL for his birthday the month before. I thought she was going to throw them in the trash. But she clutched them to her bosom like she had just discovered a new grandchild.

“What are you going to do with those,” I asked, ok accusingly. I asked accusingly. The whole point of this exercise was to leave behind the crap and just take what was absolutely necessary.

“Well, they’re his. I don’t want to leave them behind,” she said by way of obvious explanation to her idiot daughter.

So I turned to my BIL:

“Do you REALLY want these crappy balloons?” I asked. Ok, I asked sarcastically.

“What balloons?” said the guy in rehab who was getting ready for surgery and clearly was not in a festive mood.

“Ugh. Mom, throw that crap away. What does he need it for?” I asked her.

“Well, I could give them to other people with birthdays. Like Jeannie, it’s her birthday soon. I could give her one.” said my Mom innocently.

With that the guy in the bed pipes up, “Yeah, give one to Jeannie and tell her it’s from me and Happy Birthday.”

So home with us the balloons go.

This is the same woman who three days later calls me and says:

“Okay, I’ve cleaned out all of your BIL’s clothing from his dresser, and gave away everything he’ll never wear. I took all his medical supplies and meds and stored them in my house until we figure out what to keep in his new apartment. And I’m going to start taking pictures off the walls next week.”

“MOM!,” I said with the crazy attitude that every daughter wants to say to her mother every time they talk.

cell“What are you doing? We don’t even have a place for him to live yet after surgery. If we can’t get arrangements made, he may have to go back to his apartment temporarily. Let’s not make it look like a prison cell. There’s plenty of time to throw things away.”

Of course, I’m thinking, “at least he’ll have some nice balloons to look at, wherever he goes.”

“You Just have to Laugh….”

©2015 Cathy Sikorski