Tag Archives: Wheelchair

What do a Pediatrician and Blanche DuBois have in common?

Caregivers, Humor, Medicare, Multiple Sclerosis, Uncategorized, , , , , , ,
Fun at the Pediatric Dentist!
Fun at the Pediatric Dentist!

I have been searching for 2 years for a dentist to treat my brother-in-law, “L” who has MS. The issue is that L is wheelchair bound and cannot get out of the chair at all without the assistance of at least two people or a Hoyer Lift.

The dentist, eye doctor and any other pyhysician or medical facility that we have to go to, must have a wide enough room for him to enter, leave, turn around and be treated in. Thanks in great part to the Americans With Disabilities Act, most medical facilities have come to the place where L can be accommodated. But the dentist is a challenge.

Most dental offices here in Smalltown, USA are converted homes and even if we could get into the lobby, we can’t get into the treatment room. And on top of all that, since L can ‘t move from his chair to the dental chair, many dental offices I have contacted would not see him.

To be fair, his own dentist offered to try and get the lift from the wheelchair van to come even with the outside deck of the dental office, and then maybe we could skootch him through the glass sliding doors and into treatment. And I considered it until we had snowstorm after blizzard after ice storm.

And then L broke a tooth.

Now I had to put this into high gear.

I called the MS Society, who put me in touch with a dentist who was far away. Kindly, that dentist agreed to see him, but had no openings for 3 weeks. I called my own dentist who had no access at his office, but I thought he would have a recommendation. The first office was unable to help me. The second dentist was a pediatric dentist, so I was pretty sure that was going to be a wash. Never assume.

Pediatric Dentist, Dr. Zale, agreed to see L. We entered the office and were immediately surrounded by picture books, Legos, toys for every age, and a beautiful array of kids from toddler to teen. I told L not to smile too much because the broken canine in his mouth might scare the little ones. But those kids played around the wheelchair like it was a dining room chair at home. If the toy they wanted was on the other side of L, they just looked him straight in the eye and walked around him to play.

Dr. Zale and his staff took my brother-in-law into a very large and airy treatment room, somehow got him x-rayed and fixed him right up. There was no time to do a standard cleaning so they made an appointment for him to return before I even got back to the desk to pay. He was now their actual patient!

Six weeks later, the Jeff Gordon of wheelchair drivers, my brother-in-law, hits the high speed button on his wheelchair, bonks his head on his computer and completely breaks off the new tooth. I called Dr. Zale, they got him right in and took yet another two hours to fix that smile right up. Because it had taken longer than they expected the front desk ladies said they would just send me the bill. This is the bill I received:

No Charge per Dr. Zale..
No Charge per Dr. Zale..

Sometimes you just have to be ever so grateful for the kindness of strangers,  and

You still just have to Laugh…….

Cathy Sikorski

When wine and wheelchairs DO mix…..part deux

Caregivers, Humor, Multiple Sclerosis, Uncategorized, , ,

If you have been living in the Snowmaggedon part of the US this 2014, you know how desperately we all want sunshine and warmth. My last post was from a teeny jaunt to Florida and I was somehow lulled into thinking that going away meant being away.

Day Three: My friend and I are getting ready to go out to the extra special dinner we have planned for the trip. We are going to a five star restaurant to be wined and dined. We have been lolling in the sunshine, chatting for hours and resting in the warm, balmy air of Florida.

“Hello?” I already recognize the phone number, Chestnut Knoll at Home, and know it’s not good.

“Cathy? This is your brother-in-law’s caregivers. His wheelchair is broken in the lying back position, and we can’t get it to move. And it’s time for his dinner.”

All I can picture is the poor guy laying back like in a dentist’s chair trying to get some peas into his upside down mouth.

“Okay,” I say,” let me call the wheelchair repair guy, because this is their rental that they just brought him yesterday.”

Of course, it is 5:00. I’m in a bathrobe, wet hair, no make-up, our taxi is coming in a half-hour AND, I’m pretty sure wheelchair repair guy closes at 5:00.

I call the repair office, closed. I call the salesman in my phone that I have listed as ‘wheelchair Sean’ and leave a message. I do what every caregiver does. I call my mom.

“Mom, I left messages for the wheelchair repair guy but I don’t know if they will get back to me. The caregivers suggested we get a hospital tray and put him back in bed, but I don’t think that makes sense.”

My mom is 85 years old. A REALLY GOOD 85 years old, but I can’t picture her hustling a huge hospital tray on wheels into her car and over to my brother-in-law’s for dinner.

“Okay,” she says, I’ll just go over there and help feed him.”

I call back the caregivers at my brother-in-law’s phone but they don’t answer. I call their office and we formulate a plan for Mom to feed him now, they will feed him breakfast and hopefully the repair guy will get there before lunch and they can get him back in the chair by then.

My phone rings, I’m still in my bathrobe.

“Hi.” It’s wheelchair Sean. He gives me some simple directions on how to probably fix the chair.

I call the caregivers at my brother-in-law’s phone again. Still no answer. I call the office, give them the instructions. They call me back in 2 minutes, saying crisis averted, chair fixed.

I throw the phone at my friend and tell her to call my mom probably driving in her car and tell her to go home.

“Hello?” I hear my  Mom answer, as I’m putting on a face in the bathroom, and trying to get on underwear before the taxi gets here.

My friend says to my Mom: “You can go home, the wheelchair is fixed.”

“I can go home?” my Mom says. “Yes, go home, he’s fine,” my friend tells her.

“Okay, thanks. I’ll go home,” my Mom says, “ummm, WHO is this?” Explanations ensue.

My friend and I go to an absolutely lovely dinner where we are treated like princesses. We have a bottle of wine, oysters Rockefeller…my phone rings.

“Hello?”

“Hey, it’s your brother-in-law.”

“Hi, is everything ok?”

“Well, yeah, YOU called me. What did you want?”

Really?

“Oh, nothing,” I say and dive into my Pinot Grigio.

You just have to Laugh…….

Cathy Sikorski

When wine and wheelchairs don’t mix……

Caregivers, Humor, Multiple Sclerosis, Uncategorized, , , , ,

What do several rocket scientists, a computer nerd, a lawyer, a doctor, an industrial inventor a, a plumber and a nurse have in common? Let’s see………..

The day of the engagement party finally arrived. It was an unusually cool and delightful August evening. The bride-to-be was resplendent in an adorable white frock, the groom-to-be handsome and convivial with all the guests from young to old.  Because Uncle L was confined to a wheelchair from his MS, many things were put in place to make sure he could attend the party. He was an important part of the family and we all wanted him there, and he was game to go out and be with friends and family.

It was just lovely, We were really having a wonderful time. Uncle L had a nice Jack Daniels, his favorite adult beverage, and enjoyed several of the fancy hors d’oeuvres. When it came time for the buffet dinner, there weren’t enough clucking hens of mothers, nieces, sisters-in-law to fill his plate and keep his mustache clean. Of course, he was at the “cool table” where all the middle-aged people think they’re the coolest with lots of joking, insults and free flowing wine. Even Uncle L was not spared a joke or two…just like old times.

With so much taken away by that dastardly MS and the wheelchair, we all made allowances for Uncle L’s one vice-smoking. So after dinner, Uncle L wanted to go outside for a smoke. A couple of smoking cohorts joined him to proceed to the parking lot. No go. No, seriously, the wheelchair no go.

First they called me, the caregiver/lawyer. What did I do? I pushed the button that says “go.” That didn’t work. I thought about saying, “objection!” but was pretty sure that was a waste of time. Then we called over the rocket scientists and the computer guy. Hmmm, look at this, push that, fiddle here and there. Nope, nuthin’. The plumber, the nurse and the doctor wisely said, “well, we will all just have to push the chair.” This chair weighs a ton, even without a big guy in it.

So all the big guys got together pushed the chair to the transport, we got into three separate cars to meet at Uncle L’s home to get him back into his room in time for the  caregivers to get him to bed. We were a little late and God Bless these amazing caregivers who have never let us down at Chestnut Knoll at Home (I promised them I would give them a plug whenever I could as the minimum of thanks) who called me to find out where Uncle L was.

We get him and the super heavy chair out of the transport with lots of brawn and maneuvering, and they put him to bed.

The next morning I get a call from one of the lovely ladies of Chestnut Knoll at Home to tell me that I could call off the repairman I sent an emergency call to last night. She fixed the chair just by making sure the plug was connected in the back.

You just have to Laugh………

Cathy Sikorski

And the Winner is…………….

Caregivers, Humor, Multiple Sclerosis, Uncategorized, , , , , , , , ,

As every caregiver knows, I have been frustrated so often by insurance companies and physicians offices that I, well…started a blog.

If  you’ve read my : Never call an ambulance if  you’re old…..Part 2  and  Ambulance…”part trois”….., you know that one of Medicare‘s absurd rules is how to transport the infirm. They will pay for transport from facility to facility, but they will not pay for transport from your home to any medical appointment or hospital test (with certain exceptions). So, if you are completely wheel chair bound, like my brother-in-law, have no use of your legs, and your doctor orders a CAT Scan or MRI, or even the lowly X-ray, you:

A.  Can’t get there

B.  Can’t get ON the table when you get there

C.  Better have a bucket of cash stowed somewhere to pay for private transport

After days, weeks and months of figuring out the rules, and hacking at the system. I found that if my brother-in-law could be transported upright, so that he didn’t have to get out of the wheelchair, he would have to make all the arrangements with the ambulance company and pay for it himself.

If, however, he needed to get on to a medical table for any kind of test or examination AND the test or examination was at a hospital, then Medicare would pay for the ambulance and I would still have to make all the arrangements for transport.

This is how I found that out.

Medicare denied payment of a transport for a CAT scan. I followed all the rules, contacted all the right people. Got all the pre-certs, the approval numbers and the referrals. But since I had already scheduled the scan, I just used the information the insurance company gave me and had the test done.

Several weeks later, I get the denial for payment. I made a thousand phone calls, appealed the decision, twice, and was still denied as transport not an emergency or medically necessary.

Now I had to appeal to an Administrative Law Judge. This law degree I have and over 15 years of practice in Elder Law came in handy. I jump in with both feet and file the appeal. But because I’ve been around this block many times with many people, I know that a simple paper appeal will not work. Short of asking the ALJ to come to my brother-in-law’s apartment and see how the hired caregivers get him ready for the day, I’m pretty sure the information I would send would not shift the decision.

Yay….social media…..Yay….youtube.

I get up very early in the morning and with my brother-in-law’s approval, I take that amazing little iPhone I have and make a movie of the two caregivers dressing him, washing him, lifting him out of his bed and into his wheelchair, combing his hair,  helping him brush his teeth and shave, and giving him a nice pat on the head to have a good day.

I make a copy of the video, put it on a CD (yeah the Medicare appeal system isn’t that tech savvy that I could upload it), mail it to the judge, and wait.

Lo and behold after 3 hearing cancellations by the insurance company, I get a phone call from the judge’s office saying that the insurance company has decided to pay the claim and there would be no hearing.

I take a bow and accept my Oscar for best performance by  a caregiver.

You just have to Laugh……

Cathy Sikorski

I knew there was a reason I didn’t go to nursing school

Caregivers, Humor, Multiple Sclerosis, Uncategorized, , ,

   Sometimes, I just feel compelled to tell a tale because you just want to share with the world the things you discuss on the phone, that you NEVER thought would be a part of your lexicon.

I have had a few difficult weeks, but during that time, brother-in-law, L, with multiple sclerosis has been magnificent. Last year was very difficult for him, he had a myriad of health issues and he was in a rehab center/nursing home for a few months. It was pretty awful. But we were able to get him back home. Get him on his feet (figuratively not literally) and through a lot of medical care, ultimately put him in a pretty good place. He has these AMAZING caregivers who come every day to get him up and dressed, in his wheelchair, and then at night get him ready for and into bed. His MS prevents him from walking or standing any more, but he gets around like a champ in his electric wheel chair, and goes to meals, plays poker and smokes a pack a day out in the beautiful sunshine every day.

He has been SO good for the last year…..that on some level, I’m just waiting for “the other shoe to drop”. But his attitude is positive (for a curmudgeon, which is what he’s ALWAYS been) and he is truly adored by his caregivers. He’s even gotten a fish tank from his son, and watches the fishees like they’re his new best friends.

I am so very, very grateful that he has been well and happy for the last year. And I pray every day  for just another ordinary day. So today my phone rings and it’s not a number I recognize. I always answer those numbers in case it’s about anyone I’m caring for. Most of the time, it’s a robocall. But this one went like this:

“Hello?”

“Hello, Cathy?”

“Yes, this is me.”

“This is Mrs. W, a nurse from the facility where your brother-in-law lives.”

NOOOOOOOOOOOOOOOOOOOOOOOO, I’m thinking.

“Uh-oh,” I say, “anything up?”

“Oh no, everything is fine, it’s really ok, no worries.”

YEAAAAAAAAAAAAAAAAAAAAA,I’m thinking, but I’m suspicious. Nurses don’t call for no reason.

“I just wanted you to know that we were called by the caregivers because L had an open sore and they wanted us to look at it and treat it if necessary.”

“Oh, yes,” I say relieved, “I know about that, they asked me to get some derma-patches for the area. Are they not working?”

“Well, the patches he had were not staying on, but I got some ‘industrial strength’ ones and they seem to be staying on, so we will probably be able to get this sore to heal. We don’t want it to get too bad, or then he would need to go to the doctor or hospital.”

“Oh yes, of course, ” I say. And now I am almost giddy with relief that it is not anything serious and these great people are on top of it.

“So, just so you know, the area is a bit pink with a little clear injury showing. It is located between his anus and his scrotum, so it’s hard to keep the patch there, and we may have to work on keeping that there without peeling off, just to make sure we have significant healing time.

I’m now thinking…..well, I don’t have a scrotum, but ‘industrial strength’ patches  there probably really hurts.

I say:

“Ummmm, okay. Well is there anything else I need to know or do?” (Please God, say ‘no’)

“Oh, no just keep an eye on it and I think he’ll be fine,” says this fantastic nurse.”

“Ummm, okay,” I say. But I’m thinking…yeah I’m not keeping an eye on that….ever.

You just have to laugh………

Cathy Sikorski