Tag Archives: Caregiver

What’s in a name?

The generation that I mostly have cared for in the last 20 years is the ‘greatest generation’ born in the early to mid 1900’s. These wonderful people  were often here as children and maybe grandchildren of immigrants. We grew up as children, grandchildren and sometimes great-grandchildren of immigrants. Suffice to say that hardly any of us were far from the boats or the shores of Ellis Island. As a consequence, our parents always wanted to know the ethnic derivation of the families of our school chums, our friends, our bosses, our co-workers.

This wasn’t necessarily a point of prejudice as much as it was often a point of reference. So if that nice girl Maria came home with me, was she Italian? Who were that boy, Tommy’s, people? Does that last name end in ‘ski’ or ‘sky’ because that could be the difference between Polish and Ukrainian. Our parents and grandparents just wanted to know. In some ways, I think it made them feel worldly or cosmopolitan to ‘figure out’ just where those surnames and your people came from.

When I met my mother-in-law, my husband and his entire extended family were very proud of the fact that they were 100 percent Ukrainian. My daughters have always teased me that I muddied the waters with my crazy quilt of an ethnic background that is only half Italian and nothing else on my  mother’s side that anyone can actually attest to. And, as punishment for this transgression, my daughters threaten to bury me in the “Ukie” cemetery. Yes, the Ukrainians have their own cemetery. So maybe they do want to keep out riff-raff like me. And I will haunt my daughters from the dead if they bury me there.

Since we are so dramatically aware of being politically correct, you don’t hear this kind of conversation outside of elder care facilities too much.  But once my mother-in-law was comfortably ensconced in her assisted living facility, ‘ethnic-geography’ was the game of the day.

“So, Repko, is it? Where does that name come from?”

“Is it MacClellan or McClellan, because that would be Scotch or Irish, right? ”

“Are you Pennsylvania Dutch or are you a real German?”

These are the conversations you would overhear in the lobby, the dining room and at Bingo. It seemed harmless enough because everyone engaging in the game would just nod their head or say, “Oh” and that would be the end of it.

Since it was a long-standing joke in our family that I was not Ukrainian, I thought that my ethnicity with my husband’s family was at least on the approval list.

This particular day, my mother-in-law was recuperating in rehab for a gangrenous toe. She had been very, very sick and her recovery was very slow. But within  several weeks, she was remarkably back to her old self and on the mend so that she would be released from rehab back to her assisted living apartment any day.

We took a little stroll in her new special shoes that were necessary to protect her injured toes and feet, then we sashayed back to her bedroom for a little rest. She was in such good spirits, that I was telling her about all the great things waiting for her back at her apartment.

“So there’s bingo, and your friends miss you at your table, and since the weather is getting nice we will be able to go outside for walks in the garden. Isn’t that nice?”

“Sure,” she said. “I’m getting a bit tired now. These shoes are hard to walk in.”

“I know,” I tell her. “I’m tired myself, my back has been acting up and I just can’t seem to get comfortable to sleep.”

“Oh well,” she said with a  chuckle that I recognized as “this is about me not you.” And  as we sat there in  comfortable silence in her breathtakingly warm room for awhile,we both start to nod off. Her head was lolling to the side and I was losing the battle with my eyelids, and I sort of mumble under my breath:

“Aren’t we a pair? A Ukie and an Italian….”

She sits bolt upright and says:

“YOU’RE ITALIAN???? I thought you were Polish!”

You just have to Laugh…….

Cathy Sikorski

When naughty is nice……

I have done something very naughty. I must even go so far as to admit I have done it on purpose. You will probably not agree with my decision, but in the end, was I right? If you’ve read any of my blogs….you know the answer to that.

Being a caregiver puts you in the ‘decider’ seat  more times than you care to admit. And sometimes you don’t want to be George W. Bush….you WANT someone else to be the decider. But alas, you’re it. You are the caregiver.

The hired caregivers, who do all the hard stuff, the bathing, the dressing, the cleaning up, keeping the list of needed items, they gladly call on the decider when well, when decisions must be made.

So, I get a call from Susan, head honcho caregiver:

“Cathy, your brother-in-law, is acting weird.”

“Weirder than usual,” I say, hoping that this is just happy conversation, knowing all the while that I am in for a project.

“No, not usual weird—- cranky, mean and kind of ‘out of it’ weird”, she says weirdly, knowing that I KNOW she wouldn’t call me unless there was a problem to be solved.

“Hmmmm, that sounds like, ‘you-know-what’, doesn’t it,” I say with regret.

“Yup,” she says, ” a UTI” (everyone’s worst caregiving enemy…the urinary tract infection). ” He’s weird, he’s ornery and his urine looks a little tinged with brown. So that ‘s not good.”

“Okey doke,” I say with false upbeat. “I’ll call the visiting nurse he has right now and get her to call the doctor.”

Now the reason I have to go this Chutes and Ladders way is because I have no medical authority to call the doctor and beg for an antibiotic, but since he just happens to be suffering from a bed sore right now, he has a visiting nurse once a week who I can ensnare to do my dirty work.

“Hello, Visiting Nurse? I want to ensnare you to do my dirty work,” Okay I really don’t say that.

“Hello, Visiting Nurse? I got a call from the caregivers and they think his behavior and his urine suggest a UTI. I would be ever so grateful if you would call his doctor for a prescription because it’s Friday, I can’t get him to the doctor for at least three days, and if it gets too far gone, he usually ends up in the hospital.”

“Ok,” says the Visiting Nurse, “I will call this morning and get back to you.”

By 4 o’clock, I haven’t heard from anyone. So I call the pharmacist to see if there is a prescription waiting. No, of course not. So I call the doctor’s office.

“Hi, I’m call because I know the Visiting Nurse called and the pharmacy  has no prescription.”

“Yes, we see that the Visiting Nurse called this morning, and it’s in the doctor’s inbox to process.”

“I understand that the doctor is busy,”I say patiently (really  I do) but it’s Friday afternoon, and these UTI’s can be very dangerous for this guy….so if you could just see if he can get it processed tonight……”

“I’ll put a reminder on it,” says the receptionist.

So, of course, at 8:30 that night the Visiting Nurse calls to tell me they called in a prescription, with the caveat that the nurse would take a urine sample and have it to the lab BEFORE we give him the medicine, just to make sure.

So she gets the sample (that’s it’s own blog, I’m sure). I get the meds into him the next morning, and two days later they call and tell me the sample is negative.

And here’s where I’m naughty.

Years ago, when my kids were toddlers, they would suffer from chronic ear infections. I would see it coming, take them to the pediatrician, no red ears would appear in the otoscope, and the pediatrician would send me home. A day or two later, I would be right back in that office with a kid with DOUBLE ear infections, because the symptoms were obvious to me, but not yet to the otoscope. And pretty much, every time, Dr. MOM was right.

Soooooo………I just kept on giving that antibiotic to my brother-in-law since his symptoms were so obvious to all of us caregivers, he gets really, really, REALLY sick if he gets an untreated UTI, and I just was willing to go for it. I am the decider.

I know. I know. Too many antibiotics, too must MERSA, too many super bugs. I know.

But here’s the kicker. THREE DAYS LATER, the doctors office calls me and says.

“Well, you know the test was negative for an infection, but all the other markers were questionable, and so we thought an infection was on the horizon, so just finish the antibiotic as given.

Yup, DR. MOM!!!!

You just have to Laugh……..

Cathy Sikorski

Every time I think I’m out…..

The holiday season does not have an internal compass that allows you to treat every day like a holiday. In fact, I’m pretty sure that MORE, not less disasters happen during the holiday season, just as a karmic reminder that in life, there is no holiday. But a few days off can really re-charge the batteries, if you’re lucky.

I am so sleep deprived, it’s like being the mother of an infant all over again. But I have no baby to blame it on. Menopause, hot flashes, holidays, alcohol, too much food, not enough gym,those are the culprits….oh yeah, and shoulder pain, back pain, and general pain-in-the-ass middle age. That doesn’t help either.

So every time I THINK, “tonight is the night” for sleep (which I’m sure is not the same thing my husband is thinking when he’s thinking, ‘tonight is the night’), I am reminded that no caregiver is ever in her right mind.

The first time I thought this was the day after Christmas. Yay, all the hoopla is over! I can just sleep in. Everyone is well, we are all snug in our beds, no more planning, wrapping, shopping, just the blessed day of rest.

The phone rings at 7:30 AM.

“Hello?”

“Hi Cathy, this is your cousin. My Dad is in the hospital and is having surgery today and he needs to see you.”

“Umm (this because I have 25 cousins and am not sure who woke me out of an ACTUAL sleep). Okay.”

“He’s in ICU, so you have to call and ask the nurse to give him the phone or they will call you back.”

“No, I will go to the hospital, no problem.”

This uncle is my godfather, and I love him dearly. He’s a bit of a Duck Dynasty gun dealer, but I love him anyway.

So I haul myself out of bed at 7:35 AM and go to the hospital. There’s a moratorium on who can see him, ’cause his Duck Dynasty pals can be a bit overbearing. So I tell the squawk box:

“I’m here to see Mr. R, I’m his lawyer and his niece.”

Immediate entrée. I pull this lawyer card when I just don’t have time to deal with any crap. Little do I know this will come back to haunt me. I get to his room and my cousin is there with him.

“Cathy’s here now Dad, do you want to have a private conversation with her?”

“No,”says my Uncle, who is looking pretty good for a guy going into surgery, “I just wanted the hospital and everyone around here to know I have a ‘mouthpiece’ so they better watch out.

Really? I dragged my tired sorry behind out of bed the day after Christmas, so my uncle could have his lawyer as a show piece in the  ICU???? Where am I, ‘The Godfather???’ Oh, yeah, that is EXACTLY where I am.

You just have to Laugh…..

Cathy Sikorski

A holiday for who????

In a sense, we mothers, never stop caregiving. And when you’re kids come home for Christmas from college and their ‘real lives’, you sort of begin all over again.  Which of course, we LOVE, right?

But then you can’t find your favorite pj’s or slippers. Or you are under constant demand to mate the sox that you let pile up in the ever-growing ‘volcano of  unmatched socks’ because your little darlings could only bring home so much stuff, and you haven’t replenished the unforgivable pile of stuff until Christmas  day. So c’mon, Mom get it together, we’re home now and you love us.

And I do, I really, really do like  you…so much so that Dad already knows he’s been relegated to the back seat of ‘attention’ and accepts his fate as driver, drink provider (now that all are over 21..YAY) and default errand runner for all things Christmas.

What turns us caregivers into “I-DON’T-CARE” givers? About ourselves, I mean. At the drop of a semester, and a holiday, we ramp up our to-do lists, our need to make magic for everyone, and our total and complete exhaustion all in the name of creating, “it’s a wonderful life”. If only George Bailey would have gone for a massage and a facial, had his nails done (including a peppermint pedi) and THEN came home and said:

“You know what,  you’re right. Life is pretty terrific with me in it! I feel refreshed, relaxed and well-groomed. Let’s eat!”

But noooo. Like George, we caregivers choose to take the hard road. Like today when my daughter asked for chicken. And like an idiot, in the middle of making bacon for my other daughter, I ran to the basement in my bare feet (cause’ chicken daughter absconded with my slippers when hers broke in the middle of the night), zoomed over to the freezer all the while, keeping a mental timer on that bacon so it didn’t get too crispy, didn’t bother to turn the light on, cause I KNOW where the freezer is in my basement, and promptly smashed my toes, likely breaking at least two of them, into a brick that was left lying in front of the freezer.

Yay caregivers the world over! Yay Christmas! Damn you George Bailey, you just couldn’t take care of yourself for once and be a lesson to us all?

Merry Christmas, caregivers…..cause

You just have to Laugh………………….

Cathy Sikorski

The most important meal of the day…..

I wanted to return to ‘my roots’ of why I started this blog. I believed (and still do) that there is a real honest place in caregiving for laughter. There’s no way you can do this day in and day out and not see the humor in all the craziness around you.

Today is an homage to my dear mother-in-law. She was known for her subtle sense of humor. She would laugh at whatever you tossed out there as funny and she could come up with a zinger or two herself when necessary. So I feel quite certain that given the time and the retrospective, she too, would see.

So once my 94 year-old mother-in-law moved into her assisted living facility, she was quite content. She adjusted quickly and enjoyed her feisty bingo games, where the winner got a quarter for each victory(I too became a little over zealous with “BINGO!” when helping her play…to WIN)She seemed to enjoy her table companions at breakfast, lunch and dinner, as well. The facility tried to keep the table companions constant so that they could get acquainted and hopefully, enjoy some conversation at mealtime.

Things were going swimmingly. But as time rolled on and Mom became more comfortable with her surroundings, she actually began to backslide into more childlike behavior. Eventually, she needed more help dressing, reminders to go to meals, and assistance to get ready for and go to bed. Otherwise she would never change her clothes, forget to go to meals, and stay up all night watching TV and dozing in her favorite chair. (This became such a pastime for her over the last 20 years, that I was tempted to put her in that chair for her viewing….most of us would have said “Oh she looks so natural.”)

Then her time clock began to get out of whack. She would put her pajamas on after breakfast, she would refuse to go to meals because she just ate, and she would wonder why no one was coming to get her for a meal, when she had just returned to her room from lunch.

One day I went to see her and she was sound asleep in her bed at 11 o’clock in the morning. This was extremely unusual for Mom. She has been an early riser since the dawn of time, and she NEVER would go back to bed for a nap or if she was sick. She would just get dressed, take to her beloved chair, and snore away the day resting comfortably…but NEVER napping. (I think that’s reserved for lazy people like me who try to nap every day, if possible).

I go to the nurse’s office to see if they know why Mom is in bed.

“Hey, ladies! Do you happen to know why my Mom is in bed at 11:00 in the morning?”

“Ummm, not really, maybe  her aide knows?”

I hunt down her aide, and this is the story:

“She got up around 1:00 AM. I saw that she was out of her pj’s and completely dressed for the day. So I said, ‘Hey M, where are you off to?’

“I’m going down for breakfast.”

“No, darlin’ it’s not time yet, let me help you back in bed. It won’t be for awhile, so you need to get some rest.”

“Ok,” she said.

The aide took her back to her room, put her back in her nightgown and tucked her in bed.

At 3:00 AM, the aide sees my mother-in-law down in the dining room.

“Hey M, what’s going on?”

“I’m here for my breakfast.”

“No, sweetie, it’s not time yet, let’s go rest for a bit and then we will come get you for breakfast.”

Back they go to her room, get her back in her pj’s and tuck her in.

At 5:00 AM, my mother-in-law enters the dining room, perfectly coiffed and ready for breakfast. It’s dark in there and no one is at her table.

“Good Morning, M. you’re down here a bit early,” says the aide.

“I’m here for breakfast.”

“Well, that ‘s not until 8 o’clock, how about I take you back to your room to watch TV until we come get you?”

“Ok.”

At a quarter to 8, the aide goes into Marie’s room. She has now changed herself BACK into her nightgown and is asleep in her bed, as the morning sun streams brightly into her room.

“C’mon, M, it’s time to get up and go to breakfast!” says the aide.

“Oh forget it,” says my mother-in-law, and turns over and goes back to sleep.

You just have to Laugh……

Cathy Sikorski

O the places you’ll go……

Dignity is defined as : bearing, conduct, or speech indicative of self-respect or appreciation of the formality or gravity of an occasion or situation. You can be assured that once you become a caregiver, you pretty much lose any appreciation of the formality or gravity of an occasion or situation.

Aunt J has returned to stay with us for a couple of weeks. I adore her. Her Aussie accent, her amazing stories from New York City in the ’50’s and ’60’s, her willingness to be snarky with me when I just want to gossip and bitch….it’s all good. But, of course, she’s 90 years old. She doesn’t come to the table with what we would call “clean hands” in the legal world. Not that her hands are dirty, but that she has baggage like every other 90 year-old, and the whole reason she kind of needs a caregiver.

I need to watch her meds, her showering (yes, I sneak up to the door and watch to make sure she doesn’t fall down or out of the shower) and make her eat because she’s barely 90 lbs. and will forget, or say she’s not hungry.

I also help her get dressed, so that I can put her pain cream on her before she gets her 47 layers of clothing on. So today we accomplished everything….showering without falling, meds without overdose, pain cream in all the right spots, and choosing an adorable outfit for the day.

We are up and atem’ and I say:

“Hey Aunt J, where are your necklaces?”

She wears several beautiful gold bracelets, necklaces and beautiful gold earrings every day. Honestly, she is one of the hottest chick 90 year olds you’d ever want to meet!

“O dear, I don’t know.  I think I left them on, I don’t remember taking them off last night.”

“Well did you bring your gold charms?”

“No, that’s broken. but I’m going to get that fixed and I still wear my other two gold chains.”

“Here are your bracelets,” I say as I hand them to her.

She jangles around looking for the necklaces, but to no avail.

So I look under the collar of her blouses, and lo and behold, I find a chain. But I can’t pull it out. It’s stuck on something.

“Wait, wait,” I tell her, “I’m trying to pull out the chains.” So I try as gently as I can, but those gold chains will not budge.

“Okay,” I tell her, ” I’m goin’ in……”. So I stick my hand down her shirt, around her neck, into her bra and around her boobs. Yep, I said it….around her boobs.  I set the chains free, and we are on our merry way.

 

You just have to laugh……

Cathy Sikorski

 

 

A Waitress Contributes

So my girlfriend and I go out for lunch.  I ask my friend how her elderly parents are doing, on the other side of the state, and she relates how they are in the midst of considering assisted living. So we go back and forth for a few minutes talking about the possibilities, and what I know both in my experience with caregiving and with Elder Law. The waitress stops by to take our order and says,

“Hi ladies! I don’t mean to intrude but I heard your conversation and wanted to tell you about my  dad.”

“Sure, I said. What’s going on with him?”

“Well, he’s in a rehab center now, but we just moved him from the county home to a private facility for which he is paying $6500.00 a month. He doesn’t know that but we decided to put him there because he is getting excellent care.”

“Why did he leave the county home?” , I asked her.

“Well, his insurance and the medical team there said that he has reached a point, medically where he was good enough to go home. And basically, we moved him directly from the county home to hospice care.”

” Wait, WHAT? I’m sorry. What is your name?” I asked her.

“It’s Donna.”

“Donna, I am so happy to meet you. I know how hard it is to be a caregiver. So let me get this straight. Your Dad is allegedly so healthy, that he no longer needs to be in the county nursing facility. But the minute you moved him to the new facility, that facility put him in the hospice program, which means your Dad is seriously ill. ”

“And”, said this hard working, generous soul of a woman, “my Dad is a veteran and served during the war. But he is not entitled to veteran’s benefits because he has too much in assets. So, we will blow through his money, if we have to. We will make sure he gets the absolute best of care, until the money runs out, or gets as close as we need to get him veteran’s benefits.”

I happen to be going to a seminar this week that addresses this exact problem. So if I find out anything to help her, I will seek her out and tell her. But even though the veteran’s issue may be true. The thing that really frosts me…the thing that can’t possibly make any sense…is that how can the county home and the insurance company look at this sick elderly man, a veteran for crying out loud, and say: “Sure, he’s ready to go home!” And so the family, who KNOW their Dad and know that he needs a truly high level of good care,  place him in an excellent facility, and are instantly told to put him in hospice care. Do these people not know what the word, hospice, means. It means this person is really, really, really sick….and NEEDS care.

Not really a laughing matter, but absurdity abounds in this caregiving world. Thanks, Donna, for allowing me to post  your story! I’m still looking for anything that might help you.

Cathy Sikorski

Hi Ho Hi Ho, it’s off to the pharmacy we go…..

Normally my time would be spent talking about my elder care experiences and the craziness that is insurance, clothing, finances, people, food, and anything else in an ‘ordinary’ day.  But caregiving, as I continue to find out, runs the gamut across all ages and time…for the caregiver, that is.

Yesterday, my 21 year-old daughter woke up with a pain in her eye.

“Mom, what does a scratched cornea feel like?”

“Well,” I said, “let me put it this way. I would rather go into labor 10 times with 10 babies 10 days in a row, than EVER have to feel a scratched cornea again.”

“Well, my eye hurts every time I close it, so I think I might have that.”

Since she wasn’t writhing on the ground in pain, screaming for an emergency room or an epidural, even though not pregnant, I was pretty sure it wasn’t a scratched cornea. But since she was leaving for college in 4 days, and I didn’t want to drive 5 hours in 5 days when she called me writhing in pain, I decided we should see if the eye doctor could squeeze us in. Of course, as with every one of my emergencies…this was a FRIDAY, so if not taken care of today, we would be in the emergency room tomorrow. Good, or tired, or worn-down caregivers learn to hate Friday NOT Monday.

After a thorough eye exam, the doctor tells us she has GPC. Weirdly, that’s a new one on me. I was pretty sure I could sit for a Medical Boards Exam by now. It’s a form of conjunctivitis that is not contagious, but must be medicated 5 times a day, then 4 times a day, etc. for a month. And you really should wear your glasses not your contacts because the medicine has to be put in without contact lenses in your eyes for at least 15 minutes each time. Well, you might as well have told this 21 year-old college girl to get a Cyclops eye, a Freddy Kruger mask and a mermaid tail to wear back to college. She does NOT have time for ugliness or inconvenience. Tough s***t, says mummy.

Now, before we even leave for the two prescriptions she must get in her EYES (yup, it’s in both eyes, the other done just didn’t hurt yet), we beg the eye doctor to send in our claim to insurance. We don’t have vision coverage, but this is a medical problem. So we will see. I know if I had taken her to the emergency room or the regular doctor, this would be covered. Call me crazy, but my doctor does not have all those zippity-do-dah eye machines to look into my daughter’s eyes and see what’s going on there.  And I asked the doctor if we could see it ourselves, and she said, “not unless you have a microscope.” So I will keep you good readers informed about THAT insurance result. Can hardly wait.

After we leave, we need to go see “L” my brother-in-law who has MS and I care for, which, was the ONLY thing I had to do today. HAHAHA. But first I need to stop and get him a few things on his list. I need to call his caregivers to give me an extra hour tomorrow to dress him for a family party. I need to call my sister, who is picking him up. And, when I finally get to see him, I find that we need to change his password for his retirement fund and BTW his computer has crashed.

SO THEN, I finally get to the pharmacy, where, coincidentally they know me by sight, don’t even ask for my name and go right for the drugs that have been ordered for me or any family member.

“Sorry, Cathy” says Rich (yea me and the pharmy are on a first name basis), but I only have one of your scripts.”

He sees my face fall…because remember, the college girl is going back to far, far away college in 4 days.

“BUT,” he quickly adds, cause he has also seen me melt down on just such occasions as this before….because there have been MANY of them, ” you can go to the pharmacy down the road and I’ve already put your order in there, where it’s been filled.”

“Yay!, and thanks,” I say, so kindly and enthusiastic.

I drive the extra 20 minutes, go into the NEXT pharmacy, and enter a fiasco with another poor customer whose insurance company randomly cancels her son’s much  needed insurance every  90 days. I feel so bad I want to pay the $70 for her medicine and I think I would have, but the pharmacist assures her she will be reimbursed, if she just pays for it now and comes back after a few phone calls. (More like 927 phone calls in  my experience).

AND FINALLY WE GET THE MEDICINE AND IT’S ONLY THREE HOURS OUT OF MY DAY!

You just have to laugh…….

Cathy Sikorski

About that Invitation……

Okay, I know you think you are doing a kind and generous thing by inviting my wonderful disabled L to your event. But here’s the thing, you are more than willing to put out that invitation and I will even go so far as to say, that you are doing it with the most generous of hearts and spirit. You know that this person you love is severely disabled, but you want to include them to show your love and acceptance. But the truth of the matter is, you really give very little thought to what an invitation means to the caregiver.

It is not for one minute that the caregiver does not want their charge included. It is extremely unlikely that the caregiver does not love this person as much, if not more than you do.After all, they are the caregiver.  But, but, but…….really…….what will this invitation entail? Will the caregiver need to acquire appropriate clothing so as not to embarrass you or the loved one on this special occasion of yours? Will the loved one’s schedule of care, bathing, medicine, toileting, assistance for dressing, undressing, getting out of bed, getting into bed, eating, drinking or sleeping work with your event? Have you considered in any way, how will my loved one get there? Does it require special transport? Who will make that happen? Who will pay for that? Have I tried to put any of that into place, or am I just sending out this invitation?  Am I also inviting the caregiver? So do THEY have time to get ready, get their loved one ready, get to your event? Is the event the appropriate venue for my disabled loved one? Will they be able to stay for any length of time? Will the caregiver just barely get there and then have to leave because the venue doesn’t work, there aren’t appropriate toilet facilities. it’s too hot, it’s too cold, there’s no food for them?????? And that, my friends, is the short list.

You see what I mean? In your zeal to be inclusive and loving, you may, in fact, be setting up the caregiver for an over-the-top horror show. And often, the caregiver loves you too and doesn’t want to disappoint you OR the person they so desperately CARE for. And more often than not, the one who is being cared for, wants to go. Of course they do. They want to get out. They want to engage with old friends and family.They also do not really want to consider the ups and downs of turning down an invitation. Likely because, all those kind and well meaning people who have sent out the invitation, never or hardly ever make the effort to come see or spend time with the disabled loved one. Life is busy, life is hard…..I know…..I’ll invite them to our special party!!!! That way we can see them, spend time with them and (God forgive me, feel less guilty, perhaps?)

Are you really thinking this through? Could you possibly change that invite to a special birthday, wedding, anniversary or graduation, to a special visit where you go see your disabled loved one. Take them a special meal, take them out for dinner, take a load off the caregiver.

Perhaps it’s not an invitation that is so welcome, as much as it is a two-by-four upside the head that says, “Duh…..maybe I have a better idea…..”

Cathy Sikorski

A case for joint bank accounts

I may have sealed my own fate by allowing myself to be a lawyer and a caregiver. People really like that stuff. One way or another, they are going to find a use for me. My sister is now in the process of settling her aunt’s estate and she needs a lawyer who understands estates and the legal ramifications of former caregiving. She took care of this Aunt for many years. Both because she’s her Aunt and because the Aunt successfully alienated every single person in her life. My sister is now left with a miniscule estate to administer to pay back the state where her aunt had nursing home assistance and get all her other bills taken care of. Sounds easy, right? Nope, this Aunt left “everything” to my sister AND four other nieces and nephews in a foreign country. Swell. Thanks. Because NOW, rather than wrap this up easily, which a joint bank account would have accomplished, it will require a small mountain of paper work to satisfy the bank, and the state, that no one is getting anything except those who are owed. But Aunt pain-in-the- neck didn’t want a joint bank account, which of course, is absolutely her right. But oh the trouble that now creates.  And of course, corresponding with those in the foreign country that they are getting nothing and would they please acknowledge that so that we can all go on with our lives. Hmmmm.  Wonder how that will work out?