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It’s a Jungle out there…..

Caregivers are not permitted to take vacations. But good ones do so anyway. If you can get out of the country and be completely incommunicado that’s ideal (being incognito doesn’t hurt either).

My husband and I took a bucket list trip to Macchu Pichu in Peru. We nearly killed ourselves hiking mountains in high altitude and then melting with sweat in the Amazon jungle. No phone, no lights, no motor cars, not a single luxury…not really true, we stayed in some damn fine five star hotels for about five hours a night. But the only way to communicate with this caregiver was through email. In a country where you are not allowed to flush your toilet paper and must use bottled water to brush your teeth….WIFI is not high on their list. This caregiver was thrilled to be almost completely unplugged from the world for ten days.

I made sure the folks in my brother-in-law’s rehab knew that they must call my mother if any decisions needed to be made about his care. My mother gave them my sister’s phone number as well. They had enough phone  numbers to start a new yellow pages under “caregivers for Cathy’s brother-in-law.”

Baby Piranha searching for WIFI.
Baby Piranha searching for WIFI.

When I returned from conquering mountains and tarantulas, on a Saturday, there were six messages on my home phone and four on my cell phone from the rehab center. Insurance and Medicare had determined that my brother-in-law could be discharged from rehab to home, where he lives alone, even though the doctor insisted that he must remain on complete bed rest for 2 or 3 more weeks. The rehab center wanted me to know that his coverage was now terminated, three days before I returned from the jungles of Peru.

Even though they tried to call me TEN times…. with no response from me, they seemed to decide that I’m an irresponsible person. No one looked at the file to see if there was any indication of who else to call. No one took one teensy weensy step further and thought: “Gee, this is weird. That lady is in here several times a week bugging all of us for anything from therapy updates to a single sugar packet. I wonder why she is ignoring our phone calls?”

Nope.

I called on Saturday and was surprised to find that at the very least, they kept him in his room, assuming he would pay for it. Now they are  working very hard to see if they can get his insurance to reconsider.

So the good news is we checked a square off our bucket list. The better news is we didn’t die doing it, no malaria and no altitude sickness, no death by diarrhea, no tarantula bites. The best news is my brother-in-law isn’t home in a bed wondering if anybody knows where he is.

You don’t get a vacation and….

“You just have to Laugh…..”

©2014 Cathy Sikorski

 

 

What’s at steak??????

In the last four months, my brother-in-law has lost somewhere between 25 and 30 pounds. That may seem like a lot, especially for those of us who have been fighting those last damn 10 pounds for years, but it has been a blessing.

He now has lost so much of his Buddha belly that he can actually turn himself a bit from side to side. This is a spectacular advancement in the world of MS and bed sores because he may now be able to spend more time in his electric  wheelchair and less time confined to bed to protect his skin from breaking down.

He, on the other hand, sees that he has been subject to lousy food and a Spartan diabetic diet.  Now, it is kind of hard to point out the beauty of lousy food and a Spartan diet. So after much praise for his ability to scooch around (yes, I do believe that is a medical term), I researched the possibility of getting some fun back onto his food tray.

He is still in rehab for a few weeks to get stronger from wound repair surgery, so I must get permission to adjust his diet. And I do. Everyone agrees his blood sugar is exemplary and he can have sugar instead of sugar substitute. His blood pressure is also stellar, so he can have salt again as well. Hip, hip hooray.

I take this as a sign that I can ‘bring’ him a special meal of his own choosing at least once a week. It’s actually getting to the point where I’m concerned that he might loose too much weight and then we have another problem. I know, the “oh you’ll get too skinny” story is usually baloney, but he has taken refusing bad food to new heights….and I don’t blame him. In fact, he would welcome baloney, but they don’t serve that…too salty.

So, as we live in the Philly area, I brought him his favorite naughty meal. It was a cheesesteak hoagie with hot peppers. That means there were condiments such as fried onions, lettuce, tomato, and mayonnaise all slathered on that sandwich. He ate every single bite, picked the stray onions, peppers and tomatoes off the hoagie paper, and wiped his mustache with glee.

When the aide came in for his institutional food tray and it looked like he hadn’t touched a bite, I debated whether to confess. Ah…what the hell……….

“I brought him a cheesesteak.”

“Well, good for him,” said the aide. “I don’t think one person ate today’s dinner. It was that bad.”

“So our secret is safe with you?”

“What secret?”

Sometimes you find partners in crime in the best and most unexpected places.

“You just have to Laugh….”

© 2014 Cathy Sikorski

 

What makes the Hottentot so hot? Courage….the Cowardly Lion.

So I have to prepare a story about courage for a story slam. This may or may not be it.

I think my Mom is one of the most courageous people I know.  She had 5 kids all under the age of 10, and was pregnant with her 6th when my Army helicopter Dad died in a crash. Along with my Nana, she raised six pretty terrific kids (I can say that, I’m the middle child).The problem arises when she mixes her courage with a bit of the crazy.

As you may know, she is a big help to me in my caregiving duties. She is a nurse and was

This pic never gets old!
This pic never gets old!

often  called upon to help me with nonagenarians. She is in charge of all the meds for my brother-in-law. So this lady has got it together.

She gives great advice, except to herself. A few years ago, my mom and my brother Chip, decided to take a trip to Canada. My Mom has had a cabin there since 1972. It’s very rustic. The cabin is nestled next to a little lake. Years ago, my Mom and stepfather, and any other rustic thinking person, would go there all summer long for fishing, wildlife, nature, no electricity, no running water.  The kind of place I would not set foot in.

For the past 5 years or so, my Mom goes only occasionally. She still manages to find people who actually want to go there, but the boat dock is rotted, the trail to the lake is overgrown with weeds, she no longer has a garden the size of the Louvre, and so it’s just a short trip for a few days with those escaping technology or their spouses.

This time Mom and Chip went to check out the new floor that my brothers and brother-in-law had installed. They drove 8 hours from home. They were there approximately 45 minutes, when my Mom tripped on the lip created by the new floor and promptly broke her arm. See, she knew she broke it because she’s a nurse. That and the crack that sounded the minute she hit the floor.

My mother insisted that my brother get back in the car and drive her home 8 hours with that throbbing arm and nasty seat belt, so that she could go to a hospital near home. Now as the one who was probably going to be her temporary caregiver, that was great for me. As someone who tests the limits of courage and common sense. this 83 year old grandmother should have had some sense knocked into her before she hit the floor.

Courage or Crazy…………you be the judge. In any case………..

By the way…that picture IS  the  actual cabin. I made my Mom email it to me….THAT is the next story!

“You just have to Laugh………..”

Cathy Sikorski ©2014

 

 

You’re the Boss, Applesauce….Andy Warhol

My mother-in-law, Marie, thought I was as cool as Bruce Springsteen.  A few years ago, in one of her long stints at the hospital, the social worker arrived in her room and quickly began her assessment of the situation.

“Marie,” she demanded, “do you know what day it is?”

“No,”  Marie truthfully answered. Marie was in her 90’s and loving her assisted living facility. Every day came and went like it was Tuesday or Saturday, or who-the-hell-cares day.

“Well,” the highly trained professional asked, “do you know who the President is?”

Okey dokey….now I jumped in.

“Is this really necessary?” I wondered while looking the social worker straight in the eye.

“Well, I need to know if she’s oriented to space and time.”

You’re not oriented to space or time if you’re thinking an elderly woman from a facility is keeping up with current events.

“Ask her questions she knows the answer to, if you’re trying to find out if she’s in any way conscious.”

“Well, okay.” She turned to my mother-in-law and pointed to some of the other people who were visiting in the room.

“Who is that, Marie?”

“That’s my son, Ted.” Correct.

“And who is that lady next to him?”

“That’s his wife, Judi.” Also correct.

Then pointing to me: “And who is that lady there?”

“Her?” And Marie pointed to me as well.

“Yes, that lady?”

“Oh, that’s the Boss!”

Boom!

I have become legendary. Last week in my brother-in-law’s room the social worker came in to ask some questions.

“What day is it?”

“Truthfully,” he said, “I don’t give a shit.” Score 1 for the ill and infirm.

“And who is this with you today?” she asked him, pointing in my direction.

“Oh her? Yeah, watch out for her, that’s the Boss!”

“You just have to Laugh….”

© 2014 Cathy Sikorski

Pizza, Pizza……………

Arising at 4 A.M. to get to my brother-in-law’s apartment before the ambulance transport so that I could quickly give him his medications before surgery, as archly instructed by the hospital staff, may have fuzzed up my mind. I’m pretty certain this was the conversation I overheard while watching and waiting for three hours before they took him into surgery:

Nurse on phone: “Yes, those were the instructions. Yes, no food or drink after 8:00 P.M.  last night.  Well, I will have to call the doctor and see if they still want  you to come in.”

Nurse on phone to Doctor:  “Your surgery for 8 AM just called. She wanted to know if she should still come in if she had pizza for breakfast.”

Nurse back on phone to patient: “The doctor says he wants you to still come in. You won’t be his first surgery, but he wants you to come in and see if he can fit you in. What? What’s that? Okay. Well, I will inform the doctor of that, but you still need to come in.”

Take with Pills in AM
Take with Pills in AM

Nurse to any other nurse who will listen: “So she just told me that she also took some opiates and some alcohol this morning too. I don’t know if that was while she was waiting for me to get back to her, or if  she forgot to tell me the first time.”

A different nurse to my brother-in-law, who has a rash around his lips from no liquid for  the last 15 hours, is starving, and has a second nurse stabbing him all over the place trying to get the IV line in so they can administer drugs to make him happy: “Your surgery has just been moved up, lucky for you the first patient had pizza.”

“Oh yeah,” says my brother-in-law, “I was feeling all kinds of lucky today.”

To their credit, not one nurse ever violated HIPPA by revealing the name of the pizza-eating, opiate-taking, breakfast-of-champions alcohol-drinking patient who cleared the way for everyone to move up the line.

“You just have to Laugh…..”

©2014 Cathy Sikorski

 

 

 

Caregiving…It’s ra…..dic…u….lous

Caregivers are known for not taking care of themselves. I have let this stiff neck of mine haunt me for about 10 months. It took me at least 3 months to get myself to the chiropractor (who is my dear brother-in-law and treats me any time day or night, so here’s a shoutout to Yucha Chiropractic).

He tried tirelessly to get my neck to turn left and right. Because I had waited so long, my arms  tingled and it felt like hot pokers travelling along my triceps. This made removing T-shirts, sports bras and getting coffee cups out of the cabinet a Herculean task. Now, I don’t mind skipping the gym because of inappropriate clothing, but don’t mess with my morning coffee.

After serious chiropractic care and therapy, dressing, bathing and coffeeing were markedly improved. My neck was still stiff. Big deal. I taught myself to turn my entire body when merging into highway traffic. I made my workout buddy always take the elliptical to the left because that hurt less to turn and chat. I learned to sleep on my back because if I tried to sleep on my stomach, I had to keep my head lifted. My husband got spooked every time he turned towards me to see the Sphinx lying in wait.

So truthfully this wasn’t working. Six months go by, after I have an MRI, where I totally freak out on Brenda, the tech, and make her take me out of the MRI machine three times during a hellacious hot flash which turns into a panic attack. This is new to me. I believe I could watch my own open heart surgery and not freak out. Menopause and a stiffy (not that kind, you naughty reader). Ugh. So fun.

My chiro suggests a pain doctor. I finally get in to see him after a three month wait (no, I don’t go to the VA hospital, nor do I live in Canada). He says, “yep, you are a great candidate for cortisone shots.” Yay.

Shots were administered yesterday. It’s a mini-surgery. I warned them that I freaked out in the MRI, and they kindly called in a prescription for valium.  MRI freak outs surprise you with added benefits.

Post surgery on way to lunch…yea, I made my husband take me out for lunch. Even mini-surgery qualifies for staying out of the kitchen… I was turning my head like Linda Blair in the Exorcist. At least that’s how it felt. The nurse warned me that between the valium and lidocaine this could be a false positive.

After a night’s rest, it’s a bit painful, but I seem to remember sleeping on both sides last night, so that’s an improvement. It’s far from perfect, there is still pain, but they told me to wait a week to see what happens.

In the meantime, I read my MRI report.  I suffer from ridiculitis. Of course I do. I think the MRI doctor must have read these blogs.  Ok it’s radiculitis….but that just means I’m a humorist who cheers for myself…Rah Rah.

“You just have to Laugh…..”

©Cathy Sikorski

 

 

Caregiving blows hot and cold….

I’m entrenched in the rehab cycle right now. Many days to the rehab center every week are required to watch the progress of my brother-in-law, keep an eye on his care, and to make sure he’s behaving like a human being to the overworked, understaffed people running around trying to please everyone, and pretty much pleasing no one.

The very first day he entered rehab,in the dead of summer, he wasn’t there two hours and protesting royally about the heat. Now, MS sufferers really do need to be temperate. So his complaints were absolutely legitimate. To my amazement, the staff relocated him immediately to a bed where he would be next to the window and air-conditioner.

His first two roommates complained bitterly because they were freezing. My loved one had the thermostat at 60 degrees because he was alternately too hot and too cold. Ya’ think?

But the third roommate hopped on board with my brother-in-law, lickety split. They conferred daily, maybe even hourly, about how freakin’ hot it was in their room. The good news was that one guy wasn’t bundled in a sweat suit and blankets, while the other was half naked in a hospital gown embarrassing anyone who walked down the hall and peeked in mistakenly.

Flat Stanley in PA
What they want it to feel like

Every time I entered their room, the two gentlemen of Verona were commiserating about the unseemly state of the weather in their room. No matter how many times I reset the air conditioner, it wasn’t cold enough……for them. Meanwhile, anyone on the staff who was in  menopause was hanging out in their room to cool off.

By the third day of this, I was at my wit’s end trying to make these two guys happy. The only saving grace was they were enjoying the mutual complaint department. Sort of an “us against them”, giving rehab a fun kind of flavor.

Yesterday morning I entered their room and noticed that the staff had pulled the curtains closed during the night. The curtains were romantically billowing in the window forcing  the air conditioner to blow all the cold air straight up to the ceiling. I went to the window to draw open the curtains and let the cold air directly into the room. That was when I noticed the window panes had quite a bit of condensation. Looking closer, I saw the window was actually open. In fact, both windows were open. Open.

All night long, the July heat was drifting in through the open windows, allowing all the humidity to circle around and settle on their hot sweltering bodies. Ugh. Really? Someone came up with this idea as a way to cool these guys off?  I closed the windows. I asked the gentlemen to tell the staff to keep the windows closed.

The roommate quickly informed me that he thought the open windows constituted a good idea. It would allow circulation and air into the room at night. This logic reminded me of my mother-in-law.  Every time she left the house in tropical heat, she turned off the air conditioner. We told her she might as well turn off the refrigerator every time she left the house too, as that logic goes.

I return the next morning and the condensation is just waiting for me to put “Cathy was here” on the window.

Okay, so … I give up…..

“You just have to Laugh….”

Cathy Sikorski

 

 

 

 

 

I can see clearly now… the pain is gone…..

This is why you have to start taking care of yourself ASAP. And, admit maybe you should just go the old fashioned way.

My friend has always enjoyed perfect vision. As she beautifully progressed into middle age, she admired all those fancy reading glasses her friends were flaunting in hopes of looking fashionable (instead of old), and bought a pair for herself. Voila! She, herself could view ever so much better her books, her Kindle, her tax returns. Okay, she thought, not so bad. These glasses are super cute. Like when we all wanted to sport those sparkly cat’s eye glasses in the 50’s and 60’s because, well, they were just peachy keen, right?

Then she began to notice that looking far away was not all that productive either. Relenting, she went to the optometrist. Lo and behold…she needed glasses. Since her vision declined both near and far, she was encouraged to get bifocals.

“But wait!” she said, “what about contact lenses?”

“Well, of course,” said her doctor, “that’s no problem. You have to come in to be fitted.”

When fitting day arrived, my friend was beaming with happiness that modern technology gave her the opportunity to keep those old lady glasses at bay.

“Here we go!” said the perky technician. “Now, open wide, put one contact lens in each eye. We will let you get used to them for a bit, and then practice a couple of times putting them in and taking them out.”

In and out the contacts went. She was impressed that the contacts felt okay in her eyes with no real discomfort.

“Oh, that’s because they are soft lenses, so easy peasy,” the technician told her. “Let’s just do it one more time and then you’re good to go.”

In they go. Out they do not go. She pinches, she pulls, she tugs at imaginary things in her left eye. Nothing happens.

The lens was still in there. It had to be. Her eyes were watering like Niagara Falls, her fingers were giving her eye a proctology exam. She poked and prodded around desperately seeking a foreign object. Her eye was really hurting now and no lens appeared on her finger.

“Oh my!” said the tech as she leaped out of her chair to get the doctor.

“Well,” the doctor said, “I must say we’ve never had this before.”

He gazed at her eye in the special machine.

“Oh, oh my, oh that can’t be good,” said the doctor.

“What? what?” said my friend, mildly in a panic, okay probably not so mildly.

“Well, it looks like you broke the lens into three pieces in your eye. So we’re going to have to numb your eye and flip your eyelid so we can fish those pieces out of there.”

Yea…………

Her new bifocals are really quite fashion forward.

“You just have to Laugh….”

Cathy Sikorski

 

“What do women want? Shoes.” Mimi Pond

In honor of what would have been my mother-in-law’s 98th birthday, a shoe story comes to mind.

About 2 years ago, Marie got very, very ill. She was in intensive care for a few weeks. Between an infection in her big toe and dangerously low body temperature, she was in a precarious place. The conversation vacillated between surgery to remove her toe, foot or part of her leg and just seeing how she would fare at 96 years old.  (I know, when does this get funny?)

She miraculously recovered with the help of a ‘bear hug’ which is like super groovy bubble wrap that keeps you warm and brings up your body temp. And in other news, her toe took care of itself by just falling off. I know, it’s gross and horrible, but it was just the tip and the infection was then completely out of her system.

Because walking was kind of weird now, Marie had to wear special surgical shoes and regain control of her balance. She was hustled home from the hospital with peculiar shoes and instructions for physical therapy.

Her first day home, I visited her during therapy and she was quite agile and perky. I returned the next day and since it was a weekend, there was no therapy. Sitting in her  chair, she was wearing her favorite sneakers.

“Oh, no, no, Marie, that will not do,” I said.  “You need to wear the other shoes until your foot is healed and you can walk properly.”

“What other shoes?” she said. “These are my shoes.”

I wasn’t born  yesterday. In five minutes, I was hauling out the ugly, black orthopedic surgical shoes that were somehow conveniently stuffed way in the back of her closet behind suitcases and Depends packages, I displayed to her the offending footwear.

“This is what you need to wear while your foot heals.”

“Ugh,” she muttered.

Two days later, I moseyed back to the therapy room and there she ambled in the ugly shoes, but her pristine sneakers sat lovingly next to the walker waiting to be put back on Cinderella’s pining feet.

The therapist took me aside.

“She insisted on wearing her real shoes, except in therapy. It’s really not good for healing or balance. Maybe you can talk to her.”

I devised a different plan. Whilst she meandered all around the therapy room, I snatched the glass slippers like an ugly step-sister and hid them deep in the therapy room closet.

I was well versed in diversion by now and spirited her so quickly to lunch after therapy that she forgot about those sneakers. After lunch we strolled outside and then I settled her in her favorite chair for a post-repast siesta.

For the next four weeks, every time I visited Marie, she asked me the same question:

“Where did Rachel put my shoes?”

Rachel is my daughter. She had been known to play a practical joke or two on Grandma over the years. When she was a youngster, Rachel would steal Grandma’s refrigerator magnets and return them a few weeks later. One time she asked Grandma if it was ok to ‘look’ at  Grandma’s costume jewelry. That Easter, Grandma admired her own necklace around Rachel’s neck. However, at the time of this shoe incident, Rachel was firmly ensconced in graduate school in Ireland.

“Rachel, did not take your shoes, Marie. You have to wear these other ones to get better.”

“Yes, she did. Tell her I want them back.”

Simultaneously with her complete recovery, Rachel came home for a visit. When she came to see Grandma, there she was holding the shoes out like Prince Charming. What the heck….whatever works when you’re a  caregiver.

“You just have to Laugh….”

Cathy Sikorski

 

 

 

Happy 4th of July! A comment could be worth $50….

On this Fourth of July, in the spirit of Dependence—yes, I depend on you my adorable readers, and I want to give you all a big hug and a gift. But that would be hard, and I’m busy caregiving. However…………

This week I went over the moon when I saw I have over 500 followers! I am so grateful that you are riding this roller coaster with me either as a caregiver, friend, or the person who must always ride in the front seat, no matter how scary the ride.

So, as a special thanks, I want to bestow one lucky reader a $50 Target gift card. (I thought 500 dimes would be hard to ship). As soon as my husband returns home from golfing I’m going to have him pick a number from 1 to 50.  The commenter who is that magic number will be the appreciated reader!

It’s small potatoes for the kind and loyal readers you have become. I appreciate each and every one of you. I love your comments and  your stories about caregiving and hope you continue to share. In fact, one day we will have a sharing day with appreciation too, I think.

Now, my husband can be a quirky guy. (If you call khakis and golf shirts, with the occasional button down collar quirky) and he could pick the number 1.  So you never know. This is not a contest (the lawyer in me) it’s a gift. I just don’t know who it’s for.

If you comment 50 straight times, well, that wouldn’t be nice now would it? I reserve the right to give my gift to a nice person….so only nice people will be counted.

Happy 4th of July to you all!

“You just have to Laugh……”

Cathy Sikorski