Tag Archives: BIL

Winner, winner, Jack Daniels for dinner? If only…………..

Caregivers, Humor, Medicare, Multiple Sclerosis, , , , , , , , , , ,

The beauty of sharing a sense of humor with the one you are caregiving for is beyond measure.

My brother-in-law has been in and out of rehab and the hospital for 8 months now. It has been a rocky road……and not sweet, like the ice cream. But he has turned a miraculous corner and although, still in rehab for a few more weeks, I have confidence that he will finally be returning home and will be relatively healthy for a good long time.

Since he has come so far, he is finally taking an interest in his daily life and activities that eluded him while desperately trying to get healthy. And he’s funny again. He is entertaining his healthcare workers, and any one else who walks in the door, which, of course, I love.

On my trek to see him yesterday, I took my Mom and husband as we were then going to have dinner with a friend who lives close by the rehab center. It takes us an hour to get there, so we decided to take advantage of being in our friend’s neck of the woods.

A half hour before we left, there appeared some calls and one message on my cell phone from the rehab center. The nurse stated that my BIL had a few lab work issues, but if I didn’t get back to her today, we could discuss it tomorrow. As I was on my way down there to see him, I thought: Okay, no big deal. I did return her call, but she was gone for the day.

When we arrived at his room, his bed was stripped and  his wheelchair was empty. That is always a panic button for any caregiver. Where the hell is my brother-in-law????? At the nurses’ station, the nurse tells me that they sent him to the ER because his hemaglobin was so low, he might need a transfusion.

“You couldn’t leave a message that he’s at the hospital, that I just passed on the way here, so I could stop there first?”

No answer.

Off we go to the ER and they usher us into his room. There he is joking with the nurses, and, feeling relieved that he seems okay, I say, “well, yet another hospital we get to check out. Whoopee!”

This is how I know he’s ever so much better overall: “Well at least, it’s  not a Friday night!” he says.

Classically, for the last 8 months, we have gone to the hospital without fail on a Friday night. I told him my husband was getting jealous of our date nights.

jack-daniels-551052_1280Then he turns to the nurse and asks, “can I have a Jack Daniels with that Percoset?”

Then he goes into a litany:

“So now I’m going to miss my dinner. I told them at rehab, “hey, what about dinner?”. Then I come here and I’m asking them, “where’s my dinner?” But no, no dinner. And you know they’re going to screw around, and no food or drink until they decide what to do with me. And then they are going to  tell me I’m fine, because I feel fine, but then what about my dinner?”

onion-rings-274123_1280See, all of this is a sure sign that all is well in brother-in-law land. If his focus is dinner, dinner, dinner…………….he’s in great shape. You caregivers know what i mean.

In the spirit of kind caregiving and true sympathy to his plight, I say:

“Well, okay, now that we see you’re okay, we’re going to take our friend out to dinner! See you  later!”

He bursts out laughing. Yay…………

“You Just have to Laugh………..”

© Cathy Sikorski

Is your Plug Male or Female……..

Caregivers, Humor, Multiple Sclerosis, Uncategorized, , , , , , , , , , , , ,

Today’s tale is a bit vulgar….but I find honesty to be the best policy.

As my faithful readers know, I, with no training or inherent skills, have become a wheelchair repair expert over the last few years. I was able to get a different BIL (code for brother-in-law) to transport the humungous wheelchair to the rehab center, so disabled BIL would be able to get out of bed every day. By the way, there is no service, or transport that will take an empty wheelchair…well….anywhere….you have to find your own way to get it there.

One day, I’m walking down the hall of the rehab center and the physical therapist is manually pushing the electric behemoth with my BIL in the chair.

“What’s up?” I ask her.

“Oh my God, I’m so glad you’re here. No one can figure out how to get this operational.”

Because it had been a month since my BIL was even in the chair, and memory issues are a part of his disease, he was of no help either. In 2 minutes, I had everyone  operational and instructed for the forseeable future.

Then we went home.

I stayed with my BIL for about 6 hours that day. As happy as he was to be back in his apartment, he was feeling insecure and squeamish and not ready to be alone. I arrived home in time for an 8:00 PM conference call.

At 9:00 PM my phone rang.

“Hello, Cathy, this is the caregiver.”

“Hey, what’s up? Is he okay?”

“Oh, he’s fine, no problems. But we can’t plug in his wheelchair. It seems like a piece of the plug is missing that connects to the battery. So we can’t charge the chair.”

UGH. He needs that chair. He needs to be out of bed and as upright and mobile as possible to have a life where he goes to meals, talks to friends, plays SODUKU on his computer.

“Okay, I’ll come in the morning and look at it.” I must’ve been very tired. I’m still not a wheelchair repair person, what was I going to do?

Before I left the house, I called the wheelchair repair people, who told me the only thing they can do is order an entire new charger which would take 3 weeks.  When I asked what he’s supposed to do in the meantime, wheelchair repair guy thought for a minute or two (really??? no one has ever asked you THAT before?) And told me he could look around and see if they had a loaner charger, but that would take a day or two.

As I set my hair on fire in protest (only in my mind) I went over to my BIL’s apt. examined the plug and set off for the rehab center. I checked his room, as they had just cleaned it, we called down to housekeeping, I went to the nurses’ station, therapy rooms, front desk and had the social worker call the ambulance transport to look for it. No dice.

I went to my book club and my French Class. Mai oui…..I do some things for my self!

Then I returned to his apartment, there was the charger plugged in. But as my engineer BIL told me, truthfully, it was smoke and mirrors. It wasn’t charging at all. I showed the plug to him and hoped he had some brilliant insight. Nope. So I said to him:

“Well, you know what Nana would say?” She had a fine adage for problems when something would just not fit into a hole.

“Yep,” he nodded, “put a little hair around it.”  Yep, that’s what she always said.

Luckily BIL is a fiscal conservative and only used 3% of his power that day.

We then had the brilliant idea to call some local durable medical equipment providers and one dear soul sent me to Interstate Battery. As I was leaving with high hopes and the battery, my BIL said:

“I don’t know how to tell you this, but as an old man would say, I think you’re pissing up a rope!”

So with those axioms under my belt and a big huge 24 Volt battery in my arms like a newborn. I went to a big, ol’ manly grease monkey, full-of-testosterone battery warehouse.

And this is where the Good Samaritan works when he is not out on the road rescuing.

Keith worked for thirty or forty minutes to rig this battery charger so I could use it. The first thing he asked me is if it’s a male or female plug. I considered my Nana’s advice, but that didn’t lead me to any conclusion. I suppose I should have been able to deduct the answer, but I panicked and just looked as cute as I could. In that environment, I was a shoe-in.

By the way, there was never a missing part. It had been so abused over time by pulling it out by the cord that it basically pulled the charging plugs too far down into the casing.

Keith told me he has a few friends in wheelchairs and he sees this all the time, where they can’t get timely repairs and no one seems to care. He told me to just ‘Pay it Forward.’ I told him I try to do that, and he said, “well then, now it’s coming back to you!”

Sometimes…..”You just have to SMILE….and laughing never hurts, either.”

© Cathy Sikorski 2015

“